Step Forward To Cure TSC May 30, 2009
Elk Grove Village, Illinois 60194
Step Forward to Cure TSC - Elk Grove, IL
Busse Woods Forest Preserve; Registration 9am; Walk 10am. 2 mile walk at Busse Woods, Elk Grove Village, Illinois. Signs will be posted to get into Busse Woods Forest Preserve. There will be raffles held and free food as well.
Visit www.tsalliance.org or contact Michelle Kaporis at [email protected] or [email protected]
Step Forward to Cure TSC® is the TS Alliance's largest national fundraising event organized by local volunteers and families who are affected by tuberous sclerosis complex (TSC). This successful grassroots fundraising effort not only generates vital funds for TSC research but also raises awareness about TSC and the need for increased research funding to combat this complex disorder.
Official Website: http://www.tsalliance.org
Added by michelle kaporis on April 10, 2009
Comments
michelle kaporis
The walk a thon will is a great event to go to and all funds raised will go towards research and funding for individuals that have TSC.
Johnny is doing great so far and we both are waiting for FDA do approve a drug you may be familiar with called Rapamyacin. Johnny has come a long way so far. Rapamyacin is currently used to treet transplant patients that are in remission. This drug is being tested and my help individuals with TSC.
Michelle